2nd Annual RDI Meeting

ICORD at THE Second Annual RDI meeting in Edinburgh

In May 2016, ICORD spoke at the 2nd Rare Diseases International annual meeting held in Edinburgh alongside the European Conference on Rare Diseases (ECRD 2016) organised by EURORDIS. The presentation from ICORD President John Forman focused on the particular challenges of promoting rare disease policies and action plans in the emerging economies. The emphasis was on the need for parallel development of plans for rare diseases alongside the development of primary care, public health initiatives, and other essential elements of universal healthcare, of which services for rare diseases is undoubtedly one such element.