Welcome to ICORD!

International Conference on Rare Diseases and Orphan Drugs

ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals.

The mission of ICORD is to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness. Read more…

Ongoing and recent activities

  • The 12th Annual ICORD Meeting in Beijing has ended. ICORD thanks its partners and co-organizers, Chinese Organisation for Rare Diseases (CORD), Peking Union Medical College Hospital (PUMCH) partner and Rare Diseases International (RDI ) for arranging the successful meeting 7-10 September. 
  • Now we will consider what we have learnt in China and continue to prepare for the next annual ICORD meeting in India 2018!
  • ICORD was present during the Inauguration of UN’s NGO Committee for Rare Diseases in New York, 11 November 2016. Read a summary of the meeting here.
  • ICORD was very pleased to announce the statement of Helen Clark, the Administrator of the United Nations Development Programme, to the 11th Annual ICORD Meeting in Cape Town, South Africa. 
  • ICORD and Rare Disease International (RDI) collaborate to streamline efforts and boost progress on rare disease policy worldwide. Read more here.

Future annual ICORD meetings

ICORD members and non-members are welcome to send their expression of interest to host future Annual ICORD Meetings to the secretariat, icord.karolinska@sll.seRead more…


Of note

A commercial organisation, OMICS International, arranges a meeting with a name identical to ICORD, “International conference on Rare Diseases and Orphan Drugs”. Please note that ICORD is not involved in the organisation of this event.